Sunday, September 25, 2011


Imagine that you are delicate enough that the quarter-inch square stickers for the EKG they made you do left bruises behind on your velvet skin. Imagine now that you are so delicate that two hours under florescent lights, the ringing of phones, shuffling of folders left you so exhausted you slept the rest of the day and night, waking only briefly here and there to eat. Try hard to imagine it. Do. Because we are all that delicate.

My Rhys has been diagnosed with a congenital heart defect called Tetralogy of Fallot. He will require a corrective procedure, likely open heart surgery, before he turns six months of age.

I wasn't surprised somehow when they heard the murmur. Not that part. Not the murmur. A month ahead of schedule he moved down that canal red with blood and love and into my arms, a floppy doll, quiet as I leaned in and whispered my greeting, praying he'd stir, rally in the dark room of hope. And then that beautiful heart had something extra to say.

Metaphors are real and I will not apologize for them. I am a poet for a reason. And it is not to talk prettily about spring. My boy's heart came with a space most of the rest of us don't have; it is more open than the average person's and sometimes, because of this, he cannot catch his breath.

“What a perfect little being,” the barrista says staring at my baby bundled in his carrier. “Yes,” I answer, “Yes, he is.”

It is a new world. Always new. Imagine.


lisa said...

Love to you guys.

Daryl said...

Keeping good thoughts, sending positive energy and I know, I know it with all my heart that his grandma is watching over him .. he's going to grow up and show us all what a strong heart he has.

Susannah said...

I try to imagine the delicacy of us all, but I admit I often fail. Your photo of Rhys, sunlight from the window behind glowing in his wisps of hair, his cherubic face aglow, helps to keep my heart open.

Kathiesbirds said...

Oh Kitty, I cannot imagine that tumble of joy and fear! I'll keep you all in my prayers!

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